Awareness
Bring LGS, epilepsy, and SUDEP into clearer public view.
The J.C. Ragsdale Foundation
Make Every
Moment Count.
Carrying J.C.’s joy forward through awareness, education, advocacy, research, hope, and support.
A good truck and a great day.
Our mission
His life still moves us.
The J.C. Ragsdale Foundation exists to honor J.C.'s life by advancing awareness, education, advocacy, and research for Lennox-Gastaut Syndrome, epilepsy, and SUDEP while providing hope and support to individuals and families affected by these conditions.
What drives us
Action with heart.
J.C. met every challenge with a smile. We bring that same determined, joyful spirit to work that helps families feel informed, supported, and less alone.
Education
Connect families with understandable, trustworthy information.
Advocacy
Help amplify the needs and voices of affected families.
Hope & Support
Build community so no family has to face the journey alone.
The joy behind the mission
J.C. made people feel special.
He loved music loud, football Saturdays, every kind of truck, daily walks in any weather, and making people laugh. His carefree spirit could light up a room—and his determination inspired a community.
From the Yukon Spirit League to the Daily Living Center, J.C. made friendships, made memories, and made every moment count.
Read J.C.’s storyLearn and prepare
Clear information.
Compassionate support.
Understanding can replace isolation with confidence. Start with trusted, plain-language information for families and caregivers.
Understanding LGS
Learn about Lennox-Gastaut Syndrome and questions families can bring to their care team.
Explore this topic →Epilepsy & seizure safety
Find clear seizure first-aid steps and trusted epilepsy information.
Explore this topic →Understanding SUDEP
Approach SUDEP information with honesty, compassion, and practical questions.
Explore this topic →Community in motion
Events are on the way.
We’re preparing meaningful ways to gather, learn, move, make music, and celebrate J.C.’s spirit together.
Stay connected
Help hope travel farther.
Be among the first to hear about resources, events, advocacy, and ways to get involved.